Happy Gastroschisis Awareness Day! http://youtu.be/n5uujMb_hbo

I made these shirts for our family, if anyone else would like to purchase one for themselves I've added the link. This is the CHILDREN'S size that comes up, if you're wanting adults/men's/Ladies' etc. then be sure to click "see all styles" on the right side. You can customize them however you'd like.  The front says "Where there's a will, there's a RAE!" The back says "Go Dylan, GO!" with the gastroschisis green ribbon. If for some reason we end up with a profit from sales, we will donate it to gastroschisis research. http://www.zazzle.com/where_theres_a_will_shirts-235961635332060011

One step back. Dylan's been throwing up again this morning. 3 times so far. Needless to say she's not being fed today. We're a bit bummed but the good news is that she's still pooping.

I have soooo much good news to report, err write about today! Our little lady is on her second day of 1ml/hr feeds with no signs of trouble or slowing down... and... Wait for it...... SHE'S POOPING ON HER OWN!! Well, sort of, she's on erythromycin but it counts (She's been getting suppositories daily and they weren't working). She's had two awesome, pant-filling, up the back, GLORIOUS messy poops; one yesterday and one this morning! Her girth has been stable at 38cm and she's calm and happy. Oh yeah, and it's all breast milk! Here's the cherry, I get to take her outside! This is us, outside in the fresh air! You can almost see how fresh it is. I wish iPhones had scratch and sniff technology. We have our annoying girlfriend with us (that's what we call the IV pole), she wants to come everywhere with us, but still. FRESH AIR!! I can't even describe how great this feels. I have to remind myself it's not a good idea to skip while wearing an infant. I could kiss everyone I walk by! MUAH!!